Nelie,

I can't relate any personal experience with the chemo aspect, since I didn't have any (it didn't seem to be part of the standard regimen back then). I also didn't have IMRT, as it wasn't in use then either. Although I had general field radiation followed by brachytherapy, I've ended up with what I would call a tolerable level of saliva -- not great but manageable, largely with a combination of medication, Biotene, water, and sugarless gum. (This morning when I woke up I was drooling onto my pillow! laugh )

I guess if I were in your situation, I might not be inclined to push much further with the chemo, given what it's doing to you right now.

Cathy

Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989