Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | More about the Butler Flouride foam - the strength I am using is .9%. The typical "at the dentist office" flouride treatment is 1.1% Quite a noticeable difference. My dentist sells me the stuff at his cost for about 27 bucks a can.
Tip - bring your dental trays when you have your teeth cleaned and have a flouride treatment afterwards.
Nystatin is also typically a "swish and spit". That is some foul stuff to think about swallowing. I liked the Diflucan a lot better and it workd faster.
I vomited every time I used the pink magic - it still worked but I still had to go go through this puking thing. Then I was able to get a milkshake down and some Carnation Instant Breakfast. I couldn't do Boost or Ensure - it made me sick.
I was also on Duragesic patches and had morphine both in liquid and pill form for "breakthrough" pain - like the type you get from trying to swallow anything.
It all worked out though, but it was tough sledding for a while. In hindsite I don't regret not getting a PEG but it took a lot of work, caused a lot of pain and ended me up in the ER twice.
PS Cancer fatigue is a well known side effect and the reason that most of us qualify for SSDI. The chances of having fatigue from this are pretty common regardless of your meds.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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