Hello all,
The good news is that John is done with treatment (except for a possible study to reduce recurrence w/ retin A)...The bad news is that he feels aweful. Until this week he really did well. Now he can't seem to put it into words, but feels terrible...the most overwhelming specific thing is the mucous especially with the trach (he is on Tussinex and Guaneffasin) and he has a fever so he was started on antibiotics...but it alos seems to me that he is generally feeling horrible......did this happen to anyone else and do you have any tips???
Thanks so much for you support..oh, by the way we haven't we have had any more "snack pack moments"...but we joke about it a lot....
Take care,
Sara