Flo, I am just beginning in the battle to help my sister get through losing 3/4 of her tongue (5/21/04). We are now in round II or radiation and round I of cysplatin chemo after surgery. Your thoughts and ideas are wonderful and I will keep them in mind when we get to the point where she can try to eat. Right now it is tube feedings only. She is trying to swallow water, but is having much difficulty. Thank you again for the positive outlook, it is inspiring ! -Betty


Caregiver to Sister, Woodstock, VT - 3/4 tongue removed & reconstructed w/forearm 5/21/04, some in the lymph nodes, neck dissection, brachy radiation in the hospital and now going through 2nd round radiation and to add cysplatin chemo. Stage II-III.