Hi Jan
I was on a PEG tube for 15 months. I too had problems early on, although not as severe as your husband, but nevertheless irritating.

Have you noticed the length of tubing coming out of his stomach? Mine would fluctuate. Sometimes I swear my stomach would suck that tube right in. Other times the tube would be two to three times longer. I began to realize that when I had a lot of tube inside my stomach I would become nauseous, "eat" less, and become rather lethargic.

Soooo, I began to tape the tube to my stomach at the proper length to avoid these nasty little symptoms. Of course, everytime it was time to fill up I had to undo the tape but overall this worked well for me.

Hope this helps,

Jeff


Reborn June 27, 2001