Sophie, if you haven't found it yet, go to the top of this page and click on the patient forum button- it will give you a list of forums- scroll down to the "Getting through it" project. You will need to start setting up charts for both of you to use-appts- meds-nutrition and liquid intake - weight- blood pressure- etc. Don't know what your Ins is like, but there have been some really good posts over the last few days on handling Ins EOBs. A major challange in getting through this is good communication with Docs, nurses, etc. You have to ask good questions and be a good listener [especially when your hubby doesn't feel like listening] Sorry to tell you that long hours in waiting rooms, etc. may prove to be the norm. If you can, stock up on household staples and freezer foods that you can easily heat and eat- you probably won't have alot of time to shop when this gets rolling. Allow anyone who volunteers to help with yard or household stuff or errands. You will need to find times to rest too while he is getting these treatments. One is the biggest challanges to caregivers is "trying to cover all the bases". Your most important role is being by his side. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

: