She's going to feel very sick, so be prepared for that. At the same time, she'll need to taking in enough nourishment to keep her weight up and support her body's needs for the healing process to recover from the surgeries, the chemo and the radiation damages. It's also very important that she take in lots of water.

Likely, you'll need to transport her to/from treatment, do her shopping, prepare her food and help her ingest it (probably a PEG tube ), monitor her medications, etc. If you want to do more than the usual liquid foods (Boost, Ensure, generic stuf from Safeway, WalMart, etc.), a blender or food processor is a must.

If using a PEG, it's important to keep swallowing as much as possible so that the swallowing process does not become lost. Personally, I kept swallowing water and my meds, using the PEG only for the liquid food.

It would help tremendously if you can speak with her Doc and the treatment staff (nurses, dieticians, etc.), both to find out what she needs and to report her problems. There are plenty of pain and nausea medications available for the asking and the trick is to take them before they are needed so as to stay ahead of the curve.

One thing to keep in mind is that when the last radiation treatment is over, the worst has not yet come -- The effects keep on working on the body, usually peaking a couple of weeks past the last treatment.

If you can arrange it, it would probably be better if you and your sister can stagger your times with her, with someoverlap.

There's a lot of information located on the main homepage (link at the bottom of this Forum page) through the menus and even more through the Search feature and by reading there, you can learn a lot about the processes.

Also visit the Caregiver Forum and read some back topics. There are plenty of folks here who have been down this road before you and are willing help you with this.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.