 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lisa,
First, welcome to the neighborhood. As you will find there are certainly quite a few that have traveled this road before you that will be able to make the ride a tad smoother. Learn all you can and use the wisdom and experiences of others to help guide you. Your role is often the hardest.
I also noticed your husband's staging of T3N0M0 which I believe is probably more like T3N2bM0 since you mention a lump in the neck and 2 nodes were positive.
There is nothing easy about the road ahead but plenty of folks to listen to whatever you want to say.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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