I'm so sorry you're going through this. I'm a concerned daughter, too. My dad had Stage IV oral cancer twice, two different surgeries on his jaw and a wide mouth resection in between to clean up an antibiotic resistant infection, which is how they discovered the cancer had returned. We went through an awful lot in a short period of time, so some of it is a bit fuzzy in my memory. As I recall, the resection took almost as long as the mandiblectomy. He had a bit of swelling and pain afterwards, but we left the hospital a few days later. I don't think he had an NG tube after his resection.

I'm also looking for dental answers as I am worried about ORN. My dad has had teeth break off and an oral surgeon wants to remove them. It's so hard to know what to do sometimes. I hope you find the answers you're looking for and I hope knowing you're not alone in your struggles can bring you some comfort.

Last edited by Vicky1; 09-06-2022 06:00 PM.

Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
8.6.20 Clear CT!