hello paul,
welcome to this unique club that we all find ourselves in. You have found your way to a very cool site, cool in the way that there are a ton of helpful, knowledgeable, supportive and kind people here, you are now one of them. I have found this site to be so helpful for my own questions, but unfortunatly there will others behind us, that is where we all come in. Since you have this illness glad you found us.
lenny