he was refusing pain meds as constipation makes the pain around his feeding tube painful. his mouth...not so bad yet.
He can't keep anything down even from the feeding tube. so 3 times a week, he gets the IV fluids. He is in the fetal position in the car ride 2 hours a day and in bed. He is usually up and ready to go early to treatment. Today, I had to wake him right before we needed to leave. He just wants to sleep all the time and I don't blame him.
Yesterday was the first bad day. He was worse in the first 2 weeks, then had a couple of good weeks. It's been a roller coaster.
thanks to my support team above!!!
The doc takes pictures at the beginning and during and after of people who refuse treatment. Sounds morbid but I see that it's a good idea. Some need that wake up call.
Last edited by ConnieT; 09-14-2018 04:37 PM.