Hey Kristen,

This has been happening to me too. It’s pretty painful. My tongue has been feeling fine during the day but it happens as I’m trying to go to sleep. It has gotten a little less frequent over the past 2 weeks or so but still happens.
Let me know if you figure out a solution.

Thanks,
Linda

Stage 3 SCC of tongue/floor of mouth. Originally Stage T1N0M0 but one pesky lymph node discovered in neck after resection.
Now T1N1M0
Surgery 2/16/18 at UAB.
30 Proton Therapy Treatments
Cisplatin Chemotherapy