Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | I had a PEG tube during my treatment. I had it put in before we started, due to doctors' recommendations, and the fact that I was fairly thin to begin with and struggle with nutrition at times (anxiety issues, which would of course be made worse through cancer and treatment!). It wasn't as bad as I thought it would be. You can't be super active while you have one, for fear of jostling it out of position, but usually if you need one, you're not well enough to be super active anyway. (In other words, lots of TV and no tae kwon do for me. And sleeping propped up so I wouldn't mess up the tube.) And the removal was easy-peasy too. Compared to everything else, it turned out not to be as big a deal as I thought it would be. It took a while to find formula that didn't irritate my tummy, but ... that's an issue for me with a lot of things ... not so much for most folks. I'm totally wimpy when it comes to this kind of thing, and if I had to go through this treatment again, I probably would go ahead and do the tube again. Obviously, only you and your dad and his doctors can make the decision what's right for him ... but if he needs reassurances ... it's truly not so scary once you get used to having it. And when you are better, the removal really is pretty quick. I want to say it was done in the office on a regular visit, but my memory is hazy enough that I can't swear by that.
((hugs))
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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