Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Have you figured out what the pain is? I was having pain, nerve pain we think, before my recent dental work. Was on my second neurologist to sort it out, because as far as we could tell it wasn't technically related to any of the cancer surgeries I had. (Could have been nerve damage due to treatment, who knows...) Anyway, I ended up having to have all my teeth removed, unexpectedly, due to damage ... was expecting only a handful to have to come out ... and as a bizarre side effect, the pain has gone away. We had narrowed my probabilities down to trigeminal neuralgia and / or TMJ ... it probably still is or was, but it's kind of hard to grind your teeth when you don't have any, so if that's what it was, that pressure was relieved, at least! (It's the one good thing to come out of this insanity.) I'm in my 40s and wasn't planning to face any of this sort of dental work for a long time yet, since my cancer wasn't as big a deal as what you dealt with, but radiation does what radiation does.
Not sure if any of this will help you at all or not ... but the pain relief was an unexpected bonus out of a bad situation for me. Might be for you, as well.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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