Hi Tiny, and welcome!

Another member with tongue cancer just posted about PNI found in the post surgical biopsy. Hopefully you get a chance to read the post, and respond. I’ve had PNI three times with my cancers, and was able to beat it. I’m not sure who is treating you at Moffitt, I’ve never been there personally, but I do know the chief of radiation oncology, Dr. Louis B Harrison, so if you cross paths, give him my regards as he was my Dr in New York, and is the finest around!

I’ve had two peg tubes. One was when I was hospitalized after my first treatment, and had it until my cancer was found clear seven months later. The second was put in two months later for a recurrence, and had it for about five more years, although I used it intermittently through various treatments through the years. These days, they want most to do without a peg tube or similar, to continue to swallow on their own, minus other issues requiring or possibly one, but if one waa suggested, there must be a reason? It’s better to hace one put in before treatment starts to prevent infection, otherwise one can be out in radiographically or a nasal tube! Even still, they want you to swallow as long as you can, and dry swallow after that. If I had to do it again, I would get a peg tube! You will most likely still struggle, but maybe not struggle with consuming as much as the proper amount of nutrition, but such issues with mucocitis, and others, can still persist.

There are a bunch of items to help with possible radiation treatment ailments, if they weren’t already suggested, like toothpaste, mouthwash, neck cream, etc. Just ask!

Good luck