Good luck, dtm74!

To help answer two of your questions, I tried to maintain my swallowing, but usually by halfway through my treatment(s), I would need to rely on my peg tube, which I had for several years anyway, so it wasn’t a big thing. Even with that, it was still difficult for me to reach my nutritional goals, and mostly depended on areas radiated, and type of chemo I was having, sine were easy, like smaller radiated areas in my neck, and lighter chemo, while larger radiated areas, and stronger chemo’s and targeted therapy, were more difficult, for me,,with prior treatments.

Everyone can be different! Whatever you think would help you through treatments, use, as long as approved by your doctors. I found hydration to be important, maintaining swallowing as long as possible, and maintaining mouth exercising, even if relying on a peg tube, and rest! At Hope Lodge it was good being around different cancer patients, and activities, that you could tolerate. I think I did more with a group, than when I stayed alone at home!

Good luck!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs