I've not had experience with dysplasia, but my cancer did start with a sore. Since it was causing significant pain and discomfort, and causing eating difficulties, my doctors took me seriously right off, though none of us thought cancer. The ENT who did the surgery did so mostly because, as he said, sometimes a sore just needs to be cut out so it can get a fresh start healing. This is not a bad plan and something worth considering as an option. But he was also wise, and did biopsies as he went along, and that's how we discovered it was cancer. He kept trimming and getting it checked, till he had thoroughly clear margins (which meant the surgery went longer than we thought, but I'm not complaining about that part!). So in my case, we were merely treating and dealing with the sore, which was problematic. Cancer or not, it deserves dealing with; you shouldn't have to be in pain all the time.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery