Hello everyone - well, after a few (3-4) years of progressing peripheral polyneuropathy, which for me manifested mainly in the hands and arms, I've finally received the official diagnosis of Radiation Fibrosis Syndrome. In the beginning it was mainly numbness and tingling beginning in my thumb and first 2 fingers and then spreading outward over several years to my forearms, upper arms and even into the middle of my back. I describe the tingling as the feeling you get when your arm has fallen asleep in the night and is about halfway back to full feeling. Not painful (thankfully) but not pleasant.

But in the last year or year and a half I also started experiencing weakness in my left arm. That's where my lymph node tumors were and where the neck dissection took place. I can also assume that more rads were directed to that side than to the right.

So I found some new doctors and had electroconductive tests and and MRI done, and this is the result.

I'm wondering what other members of our family are experiencing symptoms like mine, and if so have you found any good ways to deal with it. I know there's no cure, and I'm working out 3 times a week at the gym to try and keep my muscles operational. And I walk a lot.

Many thanks, folks. I hope everyone is hanging in!

David

PS yes, I've read all the relevent posts here at the forum that I could find, as well as the link to the Cancer Network article by the physician (I think it was that site). I've also looked at several of Dr. Michael Stubblefield's pieces on YouTube. He's the Sloan-Kettering post-cancer treatment specialist.