MrsW, I am so very sorry the results werent good news!!!

Spots in the lungs may or may not be anything serious. A "spot" can be there for years without changing. Ive had a "spot" on my lung for the past 9 years that has not changed at all. Small spots can easily go undetected on scans. Many times with OC patients, a spot is from pneumonia (usually aspiration pneumonia).

On the bright side, this has not been proven to be cancer yet and there are new drugs that have shown to be effective in cases like your husbands. Opdivo (nivolumab) from Bristol-Meyers and Merck's Keytruda (pembrolizumab) have fast tracked thru the trials to be available years earlier. Heres a post from Brian from 10/15 about these newer medicines..... "There is a brand new drug from Bristol Myers Squibb called Opdivo (nivolumab). I would ask your doctors about this. I watched this go through clinical trials and it was later fast tracked by the FDA for lung cancers in patients that had had previous platinum based chemo. It was targeted for non small cell lung cancers. You don't comment about your specific diagnosis, but even if yours was lightly different, this is a drug that works with your own immune system and it might open up a pathway in other lung cancers for an immune response. It had some pretty good results though it didn't work for everyone. If your cancer is a variant of this, you may still get someone to try it off label. That might be a hail Mary idea, but I've always said I'm not going to go quietly into the night. It think it is at least worth talking to your doctors about sooner rather than later." This is past all the trials and is now readily available with many patients who have found great success with these drugs. Talk to your husbands doctors about the possibility of these newer immunotherapy drugs.

As far as the "hot spot" by where the his tumor was.... this could be scar tissue. As you know only a biopsy can determine exactly what is going on. Ive had many false positives that turned out to be nothing more than scar tissue. I know many others who have had this happen as well.

I know exactly what you both are going thru. Ive been there and seen countless others in the same situation where it turned out to be nothing serious. Of course, this could be cancer but until the biopsy proves it really is cancer then right now at this time you do not know for certain your husband has cancer. Our saying around here is .... its NOT cancer until the biopsy proves it is. PLEASE do your very best to focus on the facts avoiding the "what if" thinking like the plague. I know it must be next to impossible to not go there but for your own sake, please do your very best to continue to go about your regular routine as much as possible. Just think of all the time spent worrying and being upset. All the time has been stolen from you. Cancer is a thief that steal away your time. It paralyzes us into being immobile where we cant focus on anything besides "what if". By only allowing ourselves to go there for a limited amount of time we have better control over our emotions and thinking. I promise if you can do what Im suggesting you will feel better about whats going on and be able to step back to see nothing has been confirmed as of today. If (and that is a HUGE if!!!!) it would be cancer, it was caught very early where there are options for treatment as I mentioned above.

Hang in there!!!!!

(((((HUGS))))))


PS... Im sending you a PM.