Hi,

I am a 47 yr. old female recently diagnosed with Polymorphous Low grade Adenocarcinoma (PLGA), stage IV with lymph node, bone and peri-neural involvement. I underwent an 11hr. surgery for a radial arm free-flap excision and reconstruction of my hard palate. I lost three teeth and jaw bone, stripped maxillary sinus (bone was eroded) and some permanent nerve damage from surgery. Currently half way through 33 treatments of IMRT. The doctors tell me this is an indolent cancer and even though it metastisized, they still classify it as low grade and are aiming for cure. I would love to hear from anyone who has experience with this very rare type of oral cancer.