Ugh. After 3 rounds of Cisplatin and all the radiation possible we were told at our first follow up appt that they are moving up our consultation/follow up with the surgeon from June to next week because the one original node potentially has not responded to treatment. We are two weeks out of treatment. The thought is that in the next 2-3 weeks there needs to be a surgical confirmation that the node is clear. They recommended we not wait for the 3 month scan. This is the node that appeared to decrease then increase in size during treatment. We did not get to talk to the surgeon today and left not understanding if there is confirmation of treatment failure before more nodes are removed or if a more extensive surgery is done right away. Not what we were hoping to hear. Sounds like a surgery with potential unpleasant complications.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017