hello Al,
I'm so sorry to hear of your discomfort. I remember the feeling. Why don't you check in with your medical supply company for a SUCTION MACHINE. I rented it. It was very helpful to me. I remember out of all the things that drove me nuts it was the MUCUS uggh But having the suction machine was very valueable. It wasn't expensive to rent. ANd whenever I was feeling the abundance of mucus I would use the machine. Also, I know the feeling of NO INTEREST in eating. But DONT STOP. you definitely need to stay on your nutrition by using the PEG TUBE....but SWALLOW, SWALLOW, SWALLOW...what flavor are you using with BOOST. I LOVE THE VANILLA. I use Walgreens Brand of Vanilla. I would blend the vanilla with Maple Oatmeal and a BANANA ohhhhh baby was that delish. TRY IT. Even my kids would have that with me....Let me know how you make out


SCC 5/21/09 Base Of Tongue, Stage 4-age 42
5X Cipltn, 37 IMRT end 9/09
10/09 neck disection- 2nd Feed tube instal
2/11 Tracheostomy-
2/12 - 2/13 over 25 Diolations
2/14 Total voice loss
2/15 Total Laryngectomy Researched
2/16 Jaw bone starts to deteriorate TL put on Hold
6/16 30+ HBO dives
Annual PET shows NED until the hot spot lights up the jaw bone
1/17 Jaw Replacement research