 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Paul, Uptown and myself have all been classified as having a poor prognosis. Uptown was in hospice where medical teams had told him he should stop fighting. He is NOT the type to take that lying down and never quit trying to get well. That was several years ago and he is still here able to post and help others. Paul has been thru more than most of our members and still has his ongoing issues but he's still here too. I was told to get my affairs in order in 2009 and Im still here 7 1/2 years later. This just goes to show you no matter what the diagnosis is, there are some patients who surprise the doctors and somehow manage to survive even with the very worst odds. Dont let the word keratizing make you lose hope! Its just a word.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
