Welcome Beth!
Christine covered much of the information at this time. I don't think chemo is part of the treatment for ACC either, as surgery and radiation is, more specifically neutron radiation, which has positive benefit for ACC, but the locations that have them are more limited.
Not all chemo's do you lose hair, depends on type of chemo, but with radiation you usually do to the entrance and exit areas of radiation field, except with Proton Radiation, which has no exit wounds, but ACC had not been tested extensively with proton radiation.
They don't remove the teeth automatically anymore. You should see a dental oncologist for evaluation, have any teeth repaired that can be restored, if not, extracted with at least 3 weeks healing time is prefable. That may depend if they are in the radiation field too. Have fluoride trays made, given prescription fluoride, mouth guards for radiation if any metallic fillings, impeccable oral care, treat dry mouth, may help save your teeth from radiation side effects.
Mucocitus usually occurs with radiation or Chemoradiation in the head and neck. Again, impeccable oral care is important, especially after meals, rinsing with warm salt water and baking soda rinse, avoiding foods that are too hot, spicy, acidic or sharp textured to help prevent mouth sores, and infection.
Weight loss is expected, and may be kept to a minimum as mebtioned, Doctors start to get worried when you lose 5% of your body weight unintentionally in a 6 month period, so you will be monitored, and should be minimized.
You should also see a Speech and Language Therapist, SLP, for evaluation, and given exercises to do during and after treatment, which are lifelong. See a cancer dietician/nutritionist too, and have baseline testing of the thyroid as this can be effected by radiation, as well as hearing testing, if they are in the radiation field.
Light exercise, such as walking is good too for well being, and lymphatic flow, as well as light stretching as directed, and many eventually have some type physical therapy, Lymphatic Massage or Myofascial Release by trained licensed personnel to help prevent lymphdemia, fibrosis.
Here is a link to the Adenoid Cystic Carcinoma Research Foundation, which my also help with information.
https://www.accrf.org/treatment-options/overview/ Good luck!
