"Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Hi Kathy,
I'm also a patient at Johns Hopkins - it is one of the best hospitals for H&N cancer. My background is also similar to yours, although I did not have a neck dissection but did have radiation after surgery #1. Five years later I had a recurrence - same location (3 more surgeries over the next year). I was initially treated locally, but when I had a recurrence that is when I ended at Hopkins. Before this I did go for multiple opinions at a few different hospitals, but I found Hopkins to be the best.
Wishing you the best!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
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