Hi everyone, I'm so glad to have found this community. My husband Dan was just diagnosed with squamous cell carcinoma on his tongue last Friday through a biopsy performed by our local ear, nose, and throat doctor. He's had a sore on his tongue that has gotten worse over the past couple of months, but it lines up with some crooked teeth on that side of his mouth so we didn't think anything of it. On Tuesday 9/15, his tongue became so swollen that he could not swallow very well and I had to call him an ambulance. He followed up with an ENT who did a tongue biopsy and called us with the terrible news Friday afternoon. We are hoping he'll be seen for a PET scan tomorrow. Any advice is much appreciated as we start this long journey. Thanks so much.


09/23/2016 39 year old husband dx w/SCC BOT, HPV negative, keratinizing, T4A N2B M0.
11/09/2016 Right hemiglossectomy w/neck dissection. 44 lymph nodes removed, 4 malignant. No extra capsular extension, no chemo.
11/15/2016 Received g-tube.
11/23/2016 Dx w/pulmonary embolisms both lungs.
12/27/2016 Started 30 rads (TomoTherapy). No Cetuximab due to PE's.
02/07/2017 Last day of rads.
02/25/2017 G-tube removed.
05/10/2017 1st follow up CT scan clear. Next scan 11/2017.