Hi Olwen, I hope your next Dr. will give you better options for treatment. If not, I would be on the phone to Bristol Myers Squibb, and to Merck. They are the manufacturers of the newest immunotherapy drugs.(Opdivo and Keytruda) I dont know how it works in New Zealand, but there are many cases when the drug company will allow you to have the drug under a "compassionate care" scenario. You may need to get your oncologist to speak to them as well regarding this......so even though it has not been officially approved for head/neck cancer, it seems that it can be prescribed off-label, at least it is being done so here in U.S. So keep that in mind.....hoping for the very best for you and your partner.
Caregiver to husband 1998 BOT SCC surgery/rads/chemo 1999 lung met, resected 2000 lung met, resected 2000 Cisplatin /5-FU NED 14 years 10/14 BOT new primary 10-12/14 reirradiation Proton/ carbo/taxol NED 6 months 6/15 PET/CT suspicious neck node 7/15 massive throat bleed, ICU ,Trach, PEG 9/15 trach removed. carbo/taxol for lymph mets 1/16. CT radionecrosis hyoid bone and surrounding tissue 4/16 total laryngectomy/bilateral neck dissection NED 5/16
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