Welcome to OCF! Im very sorry you have a need for our group. We will help you with your father.

I know you see many scary things by reading of what some of us have been thru. Oral cancer is a terrible disease that can negatively impact someones life with the treatments, side and after effects. Most people take for granted the ability to eat a meal, for oral cancer survivors eating a meal might not be something they can do anymore.

First take a deep breath, try to focus on things one at a time without thinking too far ahead. Doctors can only suspect its cancer but it could be several other things. Only thru a biopsy will the doctor know for certain what is wrong with your father. This will take some time. Try your very best to stay busy so you are able to avoid worrying so much. When you find yourself unable to focus on anything but your father's health try to limit the amount of time you spend on that subject. Say give yourself 5 minutes then "change the channel", get up and go find something to do that is positive and will hold your attention. It could be at least a week (usually its longer) until he gets to see the doctor. Then they may not immediately do the biopsy but only a consult and schedule the biopsy for another date. After the biopsy is done it will take about a week before the final results come back. This is why I say try to stay busy, waiting is the worst and unfortunately its a big part of the diagnosis process.

Ask his doctor for a prescription for magic mouthwash. This is a mouth rinse he swishes around in his mouth for about 30 seconds then spits out. It will numb his mouth and give him some temporary relief so he can eat or drink. Keep giving him boost or ensure (store brand of nutritional drinks) or other soft foods, maybe yogurt or smoothies, soft ice cream. Dairy usually is easiest to tolerate as it neutralizes anything that would burn his sensitive mouth. He can also rinse his mouth several times a day with a mixture of one cup warm water, one tsp baking soda and 1 tsp salt (stir it up to mix the ingredients). Im pretty certain the salt will burn his mouth and be painful for your father. Cut back the salt to only a 1/4 tsp.

Ask his doctors for liquid pain medication if you think he wouldnt be able to swallow pain pills. Im sure he must be in pretty bad pain. Mouth pain is horrible!!! No patient should have to suffer like what Im sure your father is going thru right now. He probably will need some strong pain mads to help make the sore mouth tolerable. Pain meds also come with another side effect, constipation. Make sure he tells you if this happens so you can get something to take care of it.

Heres more info that can help you to understand more about oral cancer. Stick with us and we will help you both. Wishing you and your father all the very best.

OCF Main site --- Diagnosis

OCF Main --- Resources


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile