 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Troy,
Welcome to the forum. I'm sorry you have the need to be here, but I know the members of the forum will try their best to support you.
As you will probably hear from many, the effects of radiation may be different for different individuals though they do subside with time. Have you spoken to your radiation oncologist about the burning tongue? He/she may be able to give you some pain medication to help with the pain. If you have a Waterpik, rinsing your mouth with warm water and some magic mouthwash ( you can get this from your RO by prescription) on the lowest setting may help. You are entering the most challenging phase of your treatment, but soon you will see the light at the end of the tunnel.
Hopefully somebody who has had the same condition will be along soon with a post.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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