Dear Larry,

John never wanted to find out what his prognosis was. He just kept on moving ahead with his treatments. In a way that is one way of dealing with it. It's out of his hands since no one could predict or influence how the drugs were going to work, so knowing how much time he MIGHT have or MIGHT not have was kind of irrelevant. He did make sure his affairs were in order though.

I would suggest keeping an eye on the pneumonia. Do you have swallowing difficulties? If so, make sure you have a swallowing test and suggestions on feeding from the speech and language pathologist. In John's case, the pneumonia became recurrent and became lodged in his lungs. Please don't take it lightly.

I am sorry things are not better, however, if you look good to your friends, you have to be doing something right.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.