I am looking for others who have had their head and neck metastasize to lungs. It seems mine is growing slowly. But when I see Pet and nodules growing 2x size since Aug 2014 and SUV growing.

I was in a clinical trial with Avastin and Torisel, effects difficult for me and didn't work.

Anyone know of molecular therapies working. Told maybe released soon, supposedly easier on you then chemo so. Looking for info.

Last edited by larry6905; 06-03-2016 09:41 AM.
T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016