I first want to apologize for my overly emotional response. i am usually not like that at all and I like to keep myself on the straight forward talk.

After a long back and forth, my oncologist was able to get the approval for Opdivo. I should be starting soon, however I have this persistent infection in my jaw/neck that they would like to get rid of before starting. This may include taking out the titanium plate and screws from my mandiblectomy. I currently have had one screw work itself out and now have a few holes in my skin that show the titanium pieces through the holes.

I also want to thank everyone for their help and compassion. Gloria, it is comforting to hear from you as I have followed your husbands journey closely. You are beyond caring and supportive for still being around to help. Christine thank you so much for the email to let me know about the message from Brian, and Brian thank you so much for the message and offering your help. Nancy I also want to thank you for the support. I have not contacted BMS as I had never thought of it, but I will keep that in mind for the future. I should probably go back in the earlier posts of yours to read about your husbands journey of lung mets.

I don't know all the etiquette in what personal info I can give out as far as other ways to connect other than this board but if anyone would want more ways to connect, my main ways to talk to people and connect are through facebook, emails, and texts.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health