If you are still going the route of Erbitux the side effects can vary. Most people including myself had a lot of skin issues. Really dry skin and some pretty bad rashes. The rash was all over the body and was very uncomfortable. I was prescribed some gels and stuff that helped some. Also I had issues with my fingertips and toes. They would get really sensitive and cut open easily. I ended up using the liquid bandage stuff so that I could still use my fingers to grab stuff. Other than that, I didn't really have any more side effects. I am sure that there are some other people with different effects than me.
I would look into Opdivo. I am hoping to start that soon. Still waiting on approval.


Jeff - 41yrs old/previous smoker
SCC buccal mucosa/jaw bone Stage 4
Nov '14 Partial Mandibulectomy with fibula flap, neck dissection
Jan '15 Rads x35 Cisplatin x2
Apr '15 PET/CT concerning area Follow up MRI no mass.
July '15 PET/CT 11mm nodule in right lower lobe the lung.
Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules
Nov '15 erbitux
Mar '16 CT tumors are growing again, waiting on next step
June'16 hospice had 3 Opdivo infusions trying to regain health