Welcome to OCF, Merm. Im so sorry to read of your mothers illness and the route she has taken. It must have been very difficult for her making this decision. Im sure this is has been very hard on everyone in your family.

The main OCF website has page after page of info to read thru. You should find some info there to help you.

The Oral Cancer Foundation main site

There are also a couple threads on here on the message boards. Please remember everyone is different and will respond in their own unique way. What happens with one patient may not be what you see your mother experience. I know there is at least one thread where the member explained in great detail everything their family member went thru. Im sorry but I couldnt find it. Try reading thru some of the posts on either the Blogs or Left Behind sections. It was posted a while back, at least a year ago.

Best wishes with everything!

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile