After a routine teeth cleaning, my new dentist recommended I get a biopsy on a odd white fuzz growing on my gums. My previous dentist accused me of being a smoker or drinker, I don't do neither one. Then he said it must be the Senidine tooth paste I used.

He retired, thank goodness!! and a young dentist took over. He took one look, saw that my hygienist had been recording its growth for almost two years, and ordered the biopsy. Two days later I had the biopsy, three days after that I was referred to UCSF, to see a head professor at the university. He took a look and sent me to a Onocologist that is part of the UCSF hospital. One week later I am seeing the Onocologist, his advice is to watch, wait and see. I go back in two months.

I trust my oncologist, but I am scared! After extensive research online for information,...I have come to the conclusion that waiting to see is accepting that I will get oral cancer, and there is a good chance that it will kill me.

I understand it's rare, but has anyone heard of a pre treatment?? There must be some way to stop it from developing into cancer. I do not want to loose my teeth and much of my gums and then to die from this disease.
Can you please help? Or do you know of anyone doing clinical trials on this disease? I have talked to the head nurse from the Head, Neck,and Throat" Department at The City of Hope, hoping they could help me find a clinical trial. But there non,.... So here I am, hoping for some kind of information that will lead me to a research lab, or someone doing any kind of drug development or trials for this disease. Thank you for reading, Peggy K

Last edited by ChristineB; 12-31-2015 02:11 PM. Reason: removed last name