Welcome to OCF, Robin. You have found the best site for to help you get thru your battle with OC.

Our group is made up of patients/survivors and caregivers. Most patients here have received IMRT. On the main OCF pages there is so much info about anything and everything to do with OC. Here is a link to read about different types of radiation. Even though most have not had proton therapy, we can still help you with info and support. OC treatments can be difficult. Many will lose their sense of taste (dont worry its only temporary) and most have experienced a very sore throat sometimes even losing their voice. I lost mine for about 2 weeks.

The very best thing you can do is to eat and drink enough every single day. If you have been reading posts, you probably have noticed Im a broken record about a patients intake. You should begin immediately pushing to take in at least 2500 calories and 48-64 oz of water daily. If you can do better and get 3000 calories daily it will only help you get thru it a little easier. If you havent already started eating all your favorite foods, its a good plan to start right away. You dont want to go thru rads with cravings.

Best wishes with everything.


PS... Ive sent you a private message (PM). Click on the tiny flashing envelope next to the My Stuff tab. The info in the link will help make navigating the forum easier and it gives you step by step instructions on adding a signature.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile