I have lymphedema in my neck and face and am 9 months out from finishing treatments. I went to see a PT who massaged and trained me with massage. She also helped me find a collar to order as my shitty insurance, aetna, wouldn't pay for a custom one. I think if I had that, things would be better. The one I bought from amazon comes off every night while I sleep so benefits are null there.

The massage and stretching I do every morning and sometimes through out the day as it builds up. I take a shower in the AM and go through the regiment, I am sorry if I skip this. If it gets bad, I can feel it closing around my throat, it feels chokey and painful. Some days are worse than others and I think diet as well as exercise makes a difference. I have some saliva back, that's pretty exciting. PM me so I see it if you want me to go through the steps of the massage.

Get in to see a PT asap that knows the techniques because everyone is different.




HPV+ P16 positive squamous cell carcinoma

Oct 2014 found neck node lumps
Went to Oncologist (TNBC)
Ultrasound
2 CT Scans - body/head and neck
Needle & core biopsy
Pet Scan
Biopsy to find primary w/ anesthesia - failed
Second Opinion found primary & biopsied
Biopsy confirmed HPV+ P16 Squamous cell carcinoma
Radical Neck Dissection 11/22/2014
32 lymph nodes removed - 3 positive
Ported 12/29/14
Chemo and rads to start January 5, 2015
cisplatin weekly 40 mg/m2
Rads M-F for 7 weeks