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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. I have seen only a few members over the years with a similar diagnosis. Most of our members have their cancer located either at the base of their tongue or lateral tongue. Im assuming your tumor was cancerous. Treatment decisions are never easy. I would suggest getting a second opinion. If possible at a Comprehensive Cancer Center (CCC). CCCs use a team based approach so all the specialists are on the same page. You want to take care of this correctly the first time so you dont have to continue getting treatments if they arent necessary or worse, face a recurrence if mishandled. The main OCF pages have tons of info to read and educate yourself about this disease. Best wishes! OCF Main Pages... Treatment
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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