I agree with Cheryl,

I had Perneural, Lymphovascular Invasion, and positve margins, which are microscopic cancer, after a few neck dissections, and additional surgery with intraoperative radiation (IORT), which are good for microscopic cancer, including brachytherapy that is similar, were recommended, in addition too, further IMRT, chemo/targeted therapy, Proton and chemo another time. I was told without such, there was a 70% chance of cancer recurring.

In 2011 I had microscopic cancer, after my first radical neck dissection, in my uninvolved neck muscle of all places, and my ENT recommended chemoradiation, which was not done by my medical and radiation oncologist, different than the above, due to my condition, did result in a recurrence 5 months later.

At one point I was even looking into being on maintenance Erbitux, and then Tarceva, for Chemoprevention, which my two oncologists said no to, but I see so many different trials these days one may qualify for or at least I try to keep up with, just in case.

Every patient and situation is different, and so are the CCC, the doctors and their experience, and I sought out ones I thought best, and woud treat me further.

Good luck with everything.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs