OP  Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | Hi folks.
Hope it is ok to post this here...same disease, just metastisized now. learned it went to lungs. Went to see oncologist today-we were so not expecting what we were told. It feels surreal. We were told that the prognosis is grim-with chemo he might make it a year. They said 6-9 months and that chemo might give him a few more months. They are trying to get him into a clinical trial. I guess I was delusional, or maybe naive, but this is not the news we thought we were getting today. Neither of us can seem to wrap our brains around this. Please, someone, could you tell me something good-guide me to some uplifting and hopeful survivor stories-there have to be some, right? I certainly hope so, we need to find as much hope as possible. I am just completely and totally gobsmacked at the moment.
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
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