Hi Kate, I'm sorry you have to be here. Stick with us and we will help you as much as we can. I agree with Uptown. Get to a Comprehensive Cancer Center as fast as you can. Research has proven that a CCC has better outcomes for their patients. They deal with thousands of similar patients, while I would guess that your local ENT only sees a few a year. CCC's have a Tumour Board approach which involves the surgeon, chemo oncologist, radiation oncologist, Speech Language Therapist, Oncology dentist and a few others. I know where we would rather be treated.
Wishing you the best,
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!