Thanks Christine. Pretty much exhausted NY hospitals - Sloan, NYU, Beth Israel, Columbia Presbyterian,Lennox Hill, North Shore/LIJ. Spoke with Mayo & Dana Farber. Will follow up on your suggestion. You seem to be a wealth of information. I thank you and hope you are doing well at this point in time.
Best,
Rhoda

Rhoda~
chronic oral leukoplakia
squamous cell dysplasia
p16+
HPV16 negative
innumerable surgeries, 40 years