Kris originally had a PEG tube placed in 2010. This was the long pendulous type. It was a pain. He had that for 10 months. When he had his recurrence in March 2012 he had another PEG inserted. This time we insisted on a Mickey button. This sits flat against the abdomen and is so much better than the long pendulous type.
This has been in place for 3 years now. I change it myself every 3 months, a procedure that takes all of 30 seconds.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!