Hi Gayle - So glad you found this place! You will continue to get lots of support and information here from people who have been where you are. It can be challenging to help little ones to get used to your new routine, but they can also be such a blessing in helping you to concentrate on more happy stuff. When my son was diagnosed with OC, his little daughter was five and when she saw the "home made" sign language we were using, she quickly adopted it - i.e. thumbs up for "yes, shrug shoulders for "I don't know" etc, and and if the "talking" people can try to ask "yes or no" or questions that have choices like "Do you want 1-eggs, 2-soup, 3-ice cream?" (holding up 1,2,or 3 fingers) then you can hold up one, two or 3 fingers to answer. You could also make yourself a chart with squares and pictures and just point when somebody asks you a question. If you are in one room and the children in another room, you can call them with a little bell or a toy that makes a sound. You and the children or anyone else around will develop your own sign language. I had to laugh when, one day after I had brought my 5-year old granddaughter something to eat and asked her how it was, instead of saying "fine" or "really good, Mimi" she gave me the thumbs up sign. Any kind of change in life takes getting used to and with OC, progress can be slow but once you get into the routine of things, you will feel more in control and feel a lot better. Your little ones are also having to get used to the changes, but once they see how they can help, they will feel better, too. Especially if, when they do something that pleases you, you can express your very exaggerated appreciation!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)