Hi all. I also had PT for drainage of the lymph glands post surgery (as well as speech therapy and retraining in swallowing). I have heard that there are nurses in the US who specialise in this. It is well worth following up, swelling and discomfort of the face and neck is unpleasant and makes clothes difficult, apart from being unattractive. My neck was as wide as my head.

If you can, keep maintaining the PT well after the initial treatment, as sort of maintenance, even if only a session a month, and later quarterly. Radiotherapy continues to act on the body for years, ligaments continue to harden, and nerves heal very slowly. I still have shoulder and neck pain 6 years on - it's only background pain generally, but PT really helps.


6/09 lump undr chin
10/09 SCC R tonsular fossa T4N0M0, spread to tongue
11/09 R tonslctmy, partl glssctmy, nd
2/10 IMRTx30, Cispltnx3
5/10 thrombosis port cath remvd L jugular blckd
1/12 mets R lung, part lung remvd
1/13 mets R lung
2/13 partl lobectmy upper R lobe
12/14 MRI enlrgd nodes meta oesophgs
1/15 DX recur 4cm lymph
2/15 Start 6xCispltn+Erbitx+?