Maura and all,
Thank you for addressing the topic I am concerned about. Jim is 1 week post treatment and the fatigue is really hitting him. I also think his expectations are too high and he is trying to do too much.
He is trying to take in all the calories he can, but everything tastes so salty (even water). Has anyone dealt with this? Any suggestions? He conts to lose weight and has none to spare.
Thank you for the information and suggestions. There is nothing like hearing from those who have been through this horrendous experience.

Debbie


Wife to Jim with cervical node T0N1M0 dx 9/2014
Tonsillectomy with multiple bxs (all neg) 10/2014
Erbitux and IMRT started 11/2014
PEG placed 11/2014
Final rad and Erbitux 1/2015
PEG removed 1/2015