Thanks Brian

I am going to make sure the feeding tube is on a slow drip so she can take in more. I have a home health nurse coming to the house everyday and some of my family members are now trying to help. we are going to have to rely on the feeding tube because she just cant eat. She forces herself to eat 3 or 4 spoons of something soft and that's it. we are pushing her to eat more but she keeps saying she has no appetite.

I will call MDA in the morning to find out what Clinical Trial this is. I sent a message last night to the doctor in charge. She really needs to start treatment ASAP.

Thanks Brian
Heidi