Hi,
I had an unknown primary also, with a met to one lymphnode in the neck. Promptly had surgery to biopsy lump in neck followed by neck dissection and 36 XRT rad treatments. My surgeon does not believe in CT scans. RO ran several the first year, I think every 6 months. Never had a PET scan until I got a new cancer in the larynx 4 years later and then I had to request it. I wasn't about to get a total laryngetomy if the cancer had spread to toehr parts of my body.

My point is, some drs prefer not to do the scans and rely on visual scopes. Gary has posted the guidelines which are available on the NCI cancer siteas to how often these are normally done. If you are uncomfortable with not getting the tests, I would ask the dr why he doens't think they are necessary. Usually if I ask mine for one, he will order it.

Take care,
Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I