Todays meeting with the director of RO was not good. We found out theres really nothing that can be done for my dad. We can try chemo but the odds, scientifically, is against us. We are moving forward with a PEG tube and chemo as it's the only option. The RO wasnt very optimistic, referring to today being the best day my dad will ever have. His surgeon however stated that his scan from last week shows theres no cancer in his lymph nodes or his tongue and he may have a good response with chemo, we just never know . He thinks my dad will benefit from continuing with his swallow therapy because the chemo may reduce swelling and allow him to eat and talk better.

Its been a terrible day and I am angry. My dad was originally told he had stage 1 cancer and there was no way his cancer was aggressive enough for this. Now it looks like we are running out of options and that my dad is likely to suffer. I dont even know what else to say or do...


Caregiver to father
DX:4/14 Surgery:5/14 resection, ND
TX: 33 IMRT complete 9/14
Scan: 10/14, suspicious area tongue & neck.
Biopsy confirmed SCC BOT 2nd Primary, right lateral tongue.
11/14: surgery partial glossectomy, pec flap, trach, NG tube, ND
12/14: debridement surgery, small area removed for clear margins
12/14: biopsy positive for SCC dermal metastasis
1/15: chemo: erbitux, taxol and carboplatin
3/15: 5FU, Erbitux
8/15: enrolled in PD-1 Immunotherapy
9/15: Heaven got a new angel <3