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| Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome to OCF. There really are only three things to get right.
HYDRATION - NUTRITION - PAIN MANAGEMENT
He HAS to get enough fluid or he will be in the ER dehydrated. At the very least a quart or more. Try high PH water as the alkaline water feels much softer than regular water.
He HAS to get calories. If he has no PEG then high caloric foods are better as they pack more nutrition in each gulp. Fats and protein have twice the calories than carbohydrates. A cheap ten dollar baby food grinder works great at chopping up foods to make it much easier to swallow. A blender can also grind food so you don't have to chew, just swallow with water.
He HAS to keep pain under control. If he is suffering than you have to up the meds. It may seem scary and frightening about getting addicted but you just have to accept that powerful narcotics are essential for awhile.
Keep reading here and asking plenty of questions. He will get through it but it is no joy ride as you are finding out.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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